Fibromyalgia Awareness Month (with YouTube Video)

Imagine how hard it would be to suffer with daily pain that can effect your entire body, unrelenting fatigue, headaches, sleep problems, along with depression and anxiety?   Now try to imagine feeling this bad only to have friends, family, and even doctors tell you, “You don’t look sick!” or “It’s probably all in your head”.  Sadly, this is what it’s like to be a person who suffers with Fibromyalgia.

Fibromyalgia is a misunderstood, complicated, painful, chronic medical condition that affects millions of Americans, and May is devoted to bringing more awareness to it.  It’s not known why, but women are diagnosed with Fibromyalgia much more often than men.  Many women are not only suffering and living with Fibromyalgia but they are also blogging about it.  You can learn more about this disease by reading some of the funny, frustrated, and sometimes heartbreaking posts written by these incredibly strong women.  I hope you’ll take some time to check them out and show them some love.

A Day in The Life of Fibro

I was first diagnosed with Fibromyalgia in November 2009, triggered by a bought with Lyme Disease in August 2009. I started this blog because I want to share how having fibromyalgia affects my everyday life. I am not a complainer type and most of the time I try to wear a smile, so most who know me probably don’t realize what is behind it all – my daily struggles, pains, fatigue. I am not looking for sympathy, at all, I just want people to have a better understanding of fibromyalgia and how it effects sufferers on a constant, daily basis. It never goes way, and we rarely even *look* sick, so it can be very misunderstood. It is so complex and varying that I think a day to day blog is a good way to express what its like to live with FM and my daily battles and conquests. I welcome any comments, suggestions etc. WARNING: Some days will be better than others.

A Patient’s Perspective on Fibromyalgia

If you have a chronic illness, stress can make that illness worse, and it can make you moody, irritable, or depressed.

Stress acutely affects fibro. What does that mean, you ask? I mean that stress has an almost immediate effect on fibro symptoms, causing what we call a flare, or a flare-up of symptoms. I can explain it this way. Last week, I was feeling fine during the day. My pain levels were low, my energy was way up, and I was actually feeling quite good about myself and things in general. But then Wednesday came, payday, and there wasn’t enough money (again) to pay all the bills, and there just wasn’t any Peter to rob from. Of course, this caused J and I to have a big fight, and it seemed like just minutes after this fight started, so did the pain. Immediately I got a headache, and then the pains came in different areas of my body. So I know this stress/flare connection very well.

Gayle’s Blog – 365 Days to Optimal Health…

Twelve years ago I was diagnosed with Chronic Fatigue Syndrome and Fibromyalgia. For the first three years I was mainly bedridden; gradually, I have been able to function “more normally” in the mornings, but I must take long naps every afternoon. Occasionally, during a time of greater energy, I can do something in an afternoon. However, that would require much greater expenditure of energy so that I would need to make up that time the next day. Sometimes I can socialize and go to shows, theatre and visit friends. However, those activities are always planned with the possibility of my having to cancel.

Michelle from Fibromyalgia Blog…

My name is Michelle and I am almost 32 years old. I am married to a wonderful husband and we have two cats, Anibel and Mama. I love to read, listen to music, take pictures, spend time with family and friends and of course shop (what girl doesn’t).

I was diagnoised with Fibromyalgia when I was about 17 or 18 years old. It took my doctor about three months to diagnose me. I was just feeling pain all over my body, having trouble sleeping and just not feeling like myself.

I have been living with this disease for about 15 years now and it doesn’t get any easier.

Deb’s Fibromyalgia Blog

I was diagnosed with Fibromyalgia in 2003 and Chronic Fatigue Syndrome a couple years later. I am married and have 3 children and 5 grandchildren. Dwain and I retired in 2003, sold our home, purchased a 37′ Fifth Wheel and we are full-time RV’ers. The lifestyle agrees with us. I hope to share with you daily, my Fibromyalgia symptoms, websites, articles and books that may be helpful for us all. I welcome your comments and emails. I believe the more we support each other, we will have better days.

The Fibromyalgia Experiment

I am a 27 year old princess with fibromyalgia. I am trying to manage my disease, find a job that I can do from home, & retain my general awesome-ness.

From Jo Blogs

I’m a 49 year old woman, born and brought up in the UK. I became ill, or more ill with CFS/ME in 2004 after a series of traumatic life events which occurred in the same week. In 2008, I was diagnosed with Fibromyalgia and Chronic Fatigue Syndrome, sometimes called ME. I believe I’m on a path to recovery but there are ups and downs. Blogging helps me connect with others in the same position and learn about my illness.

From Shira’s Fibrofun Vlog – My Life with Fibromyalgia…

My name is Shira Danin.

I spent the last two years learning to live with the pain.

During the last year I was able to give the pain a name : Fibromyalgia.

I have a wonderful family and the best boyfriend ever.

They all support me to no end.

I wouldn’t be the same without them, nor would I be able to cope with this fibro life.

Others Blogging with Fibromyalgia:

Are you living and blogging with fibromyalgia?  Do you know someone who is?  If so, I hope you’ll leave a link in comments.

*cross-posted at BlogHer

3 comments for “Fibromyalgia Awareness Month (with YouTube Video)

  1. May 24, 2010 at 5:46 am

    Thank you for the mention of my blog.
    Just a little correction, i’ve been living with the pain for 3 years.
    I know it’s fibromyalgia for 2 years now…
    Thank you for your hard work!

  2. Linda Conner
    June 19, 2010 at 11:13 pm

    just watched ur video .I am 62 and have fibro also . I went to MANY DR. had MANY tests and tried MANY meds. Some would help SOME but most did not. When i found out there was a NAME for what was WRONG with my body i thought ….GOOD!!!! NOW they can fix me…..but ….i am now on meds that do help some…..well, they make the yukyness of fibro more bearable. Today was one of the not so bad BUT not so good days. Your blog is going to my bookmarks. Hope to see more videos from you . linda

  3. Jill
    March 15, 2012 at 2:18 am

    I too have fibromyalgia it really has changed my life peoplre dont realise how much pain you are in day in day out and how you have tocahnge your life it def needs more awareness

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